Posts tagged ‘Rethink RA’

August 14, 2013

#475 – Pfizer’s First RA Blogger Summit – Summary

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It was a full day; one that not only encouraged interaction, but also fostered new connections.

A large part of Pfizer’s First RA Blogger Summit focused upon Pfizer’s unbranded Rethink RA website and kit. In business terms, unbranded means not carrying the brand name, although in reality, when you peruse the materials, you do get that Pfizer feel. 🙂

The focus of this campaign is to provide the patient with tools to help open a meaningful dialogue with their rheumatologist, thereby improving treatment outcomes.

The team from Twist Mktg and Pfizer facilitated discussions and solicited opinions from our small group in order to fine-tune their campaign.

Some of the suggestions that were presented included:

  • giving people the option of downloading the RethinKit (currently you wait for snail mail to deliver it to you).
  • providing more scientific data on the website. (Speaking as Auntie Stress, I think that most newly diagnosed patients are already reeling from the diagnosis. Throwing in scientificese—not to be confused by lawyerese—can add fuel to the fires of confusion. An alternative would be to place this information deeper within the website.)
  • ensuring that the rheumatologist is aware of this program. (Some rheumatologists may feel threatened.)

Pfizer wanted to know:

  • if we had ever visited a pharmaceutical website for information.
  • if we have ever spoken to a representative from a pharmaceutical company.
  • what is missing in the conversations we’ve had with our doctors.

When the patient is given a strategy to help them prepare for their appointments with the rheumatologist, they are able to take back some control over what seems to be a situation in which there is none.

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Pictured above, is Chef Seamus Mullen, along with the other bloggers who were in attendance at the cooking demonstration at Haven’s Kitchen in Manhattan: Angela – Inflamed: Living with Rheumatoid Arthritis, Britt – The Hurt Blogger, Cathy – The Life and Adventures of Catepoo, Dana – At the Water’s Edge, Leslie – Getting Closer to Myself, Lisa – Brass and Ivory – Life with MS and RA, Seth – Creaky Joints (missing from photo) and Shannon – Rheum4us.org. I invite you to visit them to read about their perspectives of living with rheumatoid arthritis (and in some cases other conditions).

Related Posts:

Disclosure: travel and lodging expenses for Pfizer’s First RA Blogger Summit were covered by Pfizer.

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June 18, 2013

#462 – Pfizer’s First RA Blogger Summit – Feeding Body and Mind

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The well-used blackboard in the teaching kitchen at Haven’s Kitchen.

It was palpable. By lunchtime, the collective energy of the group attending Pfizer’s First RA Blogger Summit had dropped, almost in direct contrast to the rising temperature in New York City on May 31st (90 degrees Fahrenheit). Fortunately, Pfizer and Twist Mktg had a plan to help restore us. They had arranged to shuttle us to Haven’s Kitchen, where we met Chef Seamus Mullen. We enjoyed a delicious gluten-free meal that was prepared with love, and blended with practical and actionable know-how.

It was a privilege to be treated to chilled cucumber gazpacho, kale salad, braised chicken curry with coconut bok choy, ginger rice, and if you had room, almond cake. As we ate, Seamus demonstrated how to make braised chicken curry. He also served up his philosophy for living, working and cooking with rheumatoid arthritis, starting with “I have a great team”, then seasoning his presentation with kitchen and life management tips.

I think I may have been a bit of a Bobble-Head – I was continually nodding in agreement with what Seamus was saying, some of which I’ve blogged about over the life of A Rheumful of Tips.

Here is a sampling of what Seamus shared with us:

  • When cooking, use a step stool to alternate resting your feet and easing the tension in your back.
  • Change position often.
  • Schedule regular mealtimes.
  • Pay attention to what you eat, and how it makes you feel. He recommended an app called Thryve, which allows you to keep track of what you eat, and then adjust your diet, accordingly.

“Food is a celebration – a coming together with friends and family. It is the grease for good conversation,” stated Seamus. Food is also a fantastic way in which to invite those living with rheumatoid arthritis to think differently about living, working and cooking with this disease. It is truly important to feed the mind and body, so you can live well, in spite of having rheumatoid arthritis.

Later in the year, as a part of Pfizer’s Rethink RA campaign, Seamus will be cooking and talking his way into the hearts of the residents of ten U.S. cities. (The schedule. along with the recipes for the dishes we had, is posted here.)

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Here I am in the kitchen with Seamus Mullen.

Seamus is well-suited to this endeavour – he is approachable and knowledgeable. I appreciate that he shares one of my beliefs – that is to become an observer of yourself, then to take steps to make appropriate health and wellness-inducing changes.

Disclosure: travel and lodging expenses for Pfizer’s First RA Blogger Summit were covered by Pfizer.

June 7, 2013

#460 – Pfizer’s First RA Blogger Summit – NYC

AtopEmpireStateBldg

Enjoying the view from The Empire State Building.

I almost missed it. The invite landed in the inbox of an email address that I don’t check as often as I should. (Suffice to say, I have remedied that! 🙂 )

I had to read it several times before it sunk in that I was being asked to travel to New York City—travel and lodging expenses covered—to provide feedback on Pfizer‘s new educational program – Rethink RA.

Never mind “Hello!”, they had me at “Join us for a day of interactive discussions, learning and providing feedback about issues that are important to the rheumatoid arthritis (RA) community. Meet Seamus Mullen, award-winning chef who has RA.”

Twist Mktg expeditiously handled all my travel arrangements, going so far as to leave a care package at the front desk of the hotel, which contained bottled water and several healthy snacks. After a full day of travel, this small, thoughtful gesture set the tone for the warm welcome we received the next day, when we met members of the Twist Mktg team and Pfizer leaders in Medical, Public Affairs, Marketing and Communications.

These are the other bloggers who attended the RA Blogger Summit on May 31st, 2013: Angela – Inflamed: Living with Rheumatoid Arthritis, Britt – The Hurt Blogger, Cathy – The Life and Adventures of Catepoo, Dana – At the Water’s Edge, Leslie – Getting Closer to Myself, Lisa – Brass and Ivory – Life with MS and RA, Seth – Creaky Joints and Shannon – Rheum4us.org. I encourage you to stop by their blogs to gain different perspectives of living with RA.

Stay tuned, as I will be sharing more about my adventures in New York City in future posts, here and on Auntie Stress Café.

Related post: Pfizer’s First RA Blogger Summit – Feeding Body and Mind.

If you, or someone you know, will be in Washington, D.C., on June 20th, I have a giveaway for a ticket to attend Purses with Power, a fundraiser benefitting The Arthritis Foundation.

If you’re in Canada, there is still time to sign up and participate in The Arthritis Society’s Walk to Fight Arthritis.

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